spilt milk
When Henry was a baby, I was constantly exhausted. Every feeding took over an hour; Henry was a slow eater and had to be burped often. He spat up, every single time, all over me and the chair and the floor. After I fed him, I had to pump, which took another 45 minutes. Because he was premature, we had strict instructions to feed him every three hours to be sure he was eating enough; later, when his reflux was diagnosed, we had orders to continue feeding him every three hours to be sure his stomach wasn't too full. After his feedings he would cry and cry and cry, probably from the reflux. I remember nights when I fell asleep giving him his bottle or pumping. I remember other nights when I sobbed along with him because I didn't know what else I could do for him and I was so fucking tired that I couldn't even think straight.
I feel that way again today.
It's hard for me to explain what is going on at my house. Henry has been having colossal meltdowns over the smallest things, and because I am the one who intervenes when he starts to fall apart, he is lashing out at me. I'm not comfortable talking in detail about this, because it's really not about Henry, it's really about me; Henry is six and he's struggling to find his way in the world and for the most part he's doing a damn good job. But it's my responsibility to help him, and it is incredibly difficult sometimes. Like today.
The bottom line is this: there are behaviors that are not acceptable at our house, under any circumstances. We don't tolerate what my friend Christa calls "ugly words," for example. We are also not fans of any sort of extreme physical behavior--kicking, throwing toys, falling to the floor. Because Henry has pragmatic language difficulties, he will fall back on these behaviors when he is overwhelmed. He will, to put it bluntly, have a tantrum. But unlike a toddler, who lacks the verbal skills to do much more than just cry or thrash around, Henry pulls out the ugly words when he is frustrated.
I spend a lot of time helping Henry find strategies for articulating his feelings, strategies other than kicking and screaming and announcing that I am his "mortal enemy." We practice saying, "I am frustrated right now because . . . " or "I am angry because . . ." We practice starting our sentences with I instead of saying, "Charlie isn't playing right!" or "You just don't like me any more!" We talk about how our choices--the choice to use ugly words or have a screaming meltdown--affect the people around us. I'm trying to get Henry to understand that his friends will take his assertions that "You don't like me and I don't want to be your friend any more!" seriously. I'm trying to get him to understand that when he falls apart in a public place, we will leave.
He's not really getting it.
Today we had plans to meet Wade for lunch at a little sandwich place we like. Charlie was excited about eating pizza with Daddy; I was looking forward to being out of the house and visiting with my husband.
We never made it to lunch; we stopped at the bookstore to play on the way and Henry fell apart. I sat him in a chair and tried to talk to him, but he continued screaming. I told him what his options were: he could go back to the children's section and apologize to Charlie for throwing a train at him, and then he could sit and look at books or read with me, and then we could go to lunch with Daddy, or he could continue screaming and we would go home. He reluctantly agreed to apologize, but once we were back in children's section he fell apart again. I packed everyone up and we came home; I called Wade and cancelled lunch. I tried not to cry.
This afternoon--after we had played in our rooms and played a pirate board game and spilled milk (again) all over the kitchen floor that my housekeeper had JUST mopped--we met Leslie and her boys at another bookstore. When she called, I warned her: we may have to leave. We'll see how it goes.
We lasted half an hour and then Henry asked to go to the bathroom, alone, and I said no, I would walk back with him. And he screamed and stamped his foot. And then after the bathroom, I asked him to do or not do something, and he screamed and threw himself on the floor. As we were leaving, Charlie started to cry. "I want to STAY!" he sobbed. "So do I," I told him. "So do I."
I wanted to have lunch with my husband today; I wanted to have a nice salad and some fruity tea and some adult conversation. I wanted to visit with Leslie this afternoon in the air conditioned bookstore, which is cooler than my house. I wanted to help Charlie pick out a book or stuffed friend to get with his birthday gift cards. I wanted to go swimming or go out for coffee or do . . . something. Anything. I wanted my children to be polite and pleasant. I wanted us to have fun and be happy.
I did not want to spend the day hearing about how mean I am. I feel like I did when Henry was a tiny baby, when I knew I was doing all the right things and nothing was working. I was a good parent today; I was calm and peaceful and kind. I did not get angry; I did not yell. I did not say anything I would later regret. I was very specific about what I expected from the boys; I was very specific about what the unacceptable behavior was and what the consequences would be. I got down on my knees and looked Henry in the eye; I hugged Charlie and explained that he wasn't in trouble and that we would find time this weekend to get his book and maybe go to lunch. I told both boys, repeatedly, how much I love them. I praised them when they played nicely and used nice words and took turns. I helped Henry practice saying, "I am frustrated because . . . . " I said it myself a few times.
I spent most of the day wanting to lock myself in the bathroom and cry.
It is entirely possible that Henry's behavior is a side effect of the medication we're trying out; it is entirely possible that it is the result of his not sleeping well (which is possibly a side effect of the medication). It is entirely possible that it is the heat. It is entirely possible that it is something else altogether.
It is entirely possible that I am expecting too much of him. Or that I am expecting too much of myself. Or both.
I don't think I can do this job any more. I don't think I am qualified. I am tired and bored and frustrated. I feel like I did when Henry was a baby--like I am completely failing, despite my best efforts. I just keep moving forward and repeating myself and breathing deeply, because I don't know what else to do.
I feel that way again today.
It's hard for me to explain what is going on at my house. Henry has been having colossal meltdowns over the smallest things, and because I am the one who intervenes when he starts to fall apart, he is lashing out at me. I'm not comfortable talking in detail about this, because it's really not about Henry, it's really about me; Henry is six and he's struggling to find his way in the world and for the most part he's doing a damn good job. But it's my responsibility to help him, and it is incredibly difficult sometimes. Like today.
The bottom line is this: there are behaviors that are not acceptable at our house, under any circumstances. We don't tolerate what my friend Christa calls "ugly words," for example. We are also not fans of any sort of extreme physical behavior--kicking, throwing toys, falling to the floor. Because Henry has pragmatic language difficulties, he will fall back on these behaviors when he is overwhelmed. He will, to put it bluntly, have a tantrum. But unlike a toddler, who lacks the verbal skills to do much more than just cry or thrash around, Henry pulls out the ugly words when he is frustrated.
I spend a lot of time helping Henry find strategies for articulating his feelings, strategies other than kicking and screaming and announcing that I am his "mortal enemy." We practice saying, "I am frustrated right now because . . . " or "I am angry because . . ." We practice starting our sentences with I instead of saying, "Charlie isn't playing right!" or "You just don't like me any more!" We talk about how our choices--the choice to use ugly words or have a screaming meltdown--affect the people around us. I'm trying to get Henry to understand that his friends will take his assertions that "You don't like me and I don't want to be your friend any more!" seriously. I'm trying to get him to understand that when he falls apart in a public place, we will leave.
He's not really getting it.
Today we had plans to meet Wade for lunch at a little sandwich place we like. Charlie was excited about eating pizza with Daddy; I was looking forward to being out of the house and visiting with my husband.
We never made it to lunch; we stopped at the bookstore to play on the way and Henry fell apart. I sat him in a chair and tried to talk to him, but he continued screaming. I told him what his options were: he could go back to the children's section and apologize to Charlie for throwing a train at him, and then he could sit and look at books or read with me, and then we could go to lunch with Daddy, or he could continue screaming and we would go home. He reluctantly agreed to apologize, but once we were back in children's section he fell apart again. I packed everyone up and we came home; I called Wade and cancelled lunch. I tried not to cry.
This afternoon--after we had played in our rooms and played a pirate board game and spilled milk (again) all over the kitchen floor that my housekeeper had JUST mopped--we met Leslie and her boys at another bookstore. When she called, I warned her: we may have to leave. We'll see how it goes.
We lasted half an hour and then Henry asked to go to the bathroom, alone, and I said no, I would walk back with him. And he screamed and stamped his foot. And then after the bathroom, I asked him to do or not do something, and he screamed and threw himself on the floor. As we were leaving, Charlie started to cry. "I want to STAY!" he sobbed. "So do I," I told him. "So do I."
I wanted to have lunch with my husband today; I wanted to have a nice salad and some fruity tea and some adult conversation. I wanted to visit with Leslie this afternoon in the air conditioned bookstore, which is cooler than my house. I wanted to help Charlie pick out a book or stuffed friend to get with his birthday gift cards. I wanted to go swimming or go out for coffee or do . . . something. Anything. I wanted my children to be polite and pleasant. I wanted us to have fun and be happy.
I did not want to spend the day hearing about how mean I am. I feel like I did when Henry was a tiny baby, when I knew I was doing all the right things and nothing was working. I was a good parent today; I was calm and peaceful and kind. I did not get angry; I did not yell. I did not say anything I would later regret. I was very specific about what I expected from the boys; I was very specific about what the unacceptable behavior was and what the consequences would be. I got down on my knees and looked Henry in the eye; I hugged Charlie and explained that he wasn't in trouble and that we would find time this weekend to get his book and maybe go to lunch. I told both boys, repeatedly, how much I love them. I praised them when they played nicely and used nice words and took turns. I helped Henry practice saying, "I am frustrated because . . . . " I said it myself a few times.
I spent most of the day wanting to lock myself in the bathroom and cry.
It is entirely possible that Henry's behavior is a side effect of the medication we're trying out; it is entirely possible that it is the result of his not sleeping well (which is possibly a side effect of the medication). It is entirely possible that it is the heat. It is entirely possible that it is something else altogether.
It is entirely possible that I am expecting too much of him. Or that I am expecting too much of myself. Or both.
I don't think I can do this job any more. I don't think I am qualified. I am tired and bored and frustrated. I feel like I did when Henry was a baby--like I am completely failing, despite my best efforts. I just keep moving forward and repeating myself and breathing deeply, because I don't know what else to do.

38 Comments:
Oh, girl, *sigh*, you need a day off. You did everything you could, you were consistent, fair, clear. I am so proud of you. Thankfully, you know the details of what Henry is dealing with...but, that doesn't make the tiredness disappear. If I were close by, we could give H & J a couple of light sabers and have them battle it out of their systems while we sat still with an iced Coke Blak (alcohol optional).
My email is open! C
Hi Susan, I've been enjoying your blog for a couple of months now, both your stories and the drink recipes. I can relate to this... I have two boys on the autism spectrum -- not the same as NVLD but not so dissimilar in some areas. My kids tend to be great at the start of summer but then begin to fall apart after several weeks of the change in their routine. I try to keep them physically busy and that helps keep them "organized" inside. It's hot here in SoCal too (107!) so it's not easy to be outside so we've done bowling, indoor gymnastics, indoor playgrounds (Pump it Up), swimming, indoor "boot camp" with mom, etc. I don't know if Henry fits the profile of a kid with sensory processing issues as well, but if so the book "The Out of Sync Child Has Fun" is a good resource. I hope it gets better.
*hug*
That's all I know to say.
Oh hon. I know sometimes this must feel like a relentless slog but look at all the new things he's done! All the ways he's grown and challenged himself and been proud of his new skills!
You're NOT a bad Mama.
I know that I would not have handled that kind of day with the grace that you did. I would have lost it. Way to go.
I'm right there with you today. I've been up since 4am and had to endure spectacular meltdown after meltdown today and the toddler would not let the baby nap and you can guess how happy that made the baby. I guess the answer is you just keep going and tomorrow is tomorrow and tg today is nearly done. I can hear you yearning not just for you time, but for simple enjoyments like quiet time at the bookstore and with a friend. I wonder if there is anything to the reflux/sensory piece that stays with them or is related. Just thinking out loud here.
geez... this is what I do all day, just not with my OWN child. Send me an email- we'll talk.
and one more thing: {HUG}
(okay, REALLY bad typist- i just wrote "one hore thing" which I erased... but realized that that is much funnier than what I meant to type. I think I just called one of us a "hore".
At least it's the weekend now and hopefully Wade can ease your parenting responsibilities for a couple days. Hugs. You are doing the best I can imagine anyone doing.
It's so hard when you're at the end of your rope and you don't know when things are going to get better, or what will make them better. I agree with cmommy, you need a day off. Wish I lived in OK, I'd come babysit for you.
You're a kick ass mom. I am in awe that you were able to hold it together like you did, and in doing so, you modeled for Henry how he needs to act when he's frustrated. You walked the talk, sister. Get a sitter tomorrow, go to Panera with Wade ('cause I KNOW that's where you were going), get a Frontera chicken sandwich with extra pesto, and chill for a couple of hours. You. Did. Great.
Hugs to you- I am still in the baby reflux stage of things!
I don't know what to say except I'm here to cheer you on! Here I go...
Give me an S
Give me a U
Give me an S
Give me an A
Give me an N
What's that spell? GREAT MOM!
Christy, you always make me smile.
Thanks, girls. I wish there were words to tell you how much I appreciate your kindness.
Oh Susan. Lots of hugs.
Does it help if I offer to cry with you some?
I'm so proud of you for being the mom, keeping your cool, getting those boys through the day alive. Good work.
After a week of terrible days with a particular oh-so-challenging daycare tot, I complained to my sweetie, "I try everything I know to do, I do it consistently and well, and I'm just not.getting.through to this boy. I feel like such a failure."
His response? "Every day you get to the end of the day and he's still alive, you have succeeded."
He made me laugh, which was what I needed. And you know what? He's right, at least a little bit. :-)
Oh my goodness. *I* feel a little bit better after reading the comments. And I hope you do too.
I love you!
And I love Mary P. too.
And I wish I lived next door to you so I could take Henry for a day so you could go out with Charlie.
Oh, man. If you got through the day and didn't say anything you regret, then I'd say that's worthy of a huge celebration.
(But I know that the real issue here is imagining yourself doing this every day for an undisclosed period of time. I know, because I fear that too. I do.) Bryce and Henry are so similar, I can't tell you how many times I've had to leave a place and explain to Quinn that it wasn't his fault. Sigh. I'm so sorry. I know these days can feel like the end of the world sometimes.
Just keep it up. What you're doing is making a huge difference. I know you know that, but the emotional exhaustion makes you forget sometimes.
I feel for you... I have a special needs daughter (and two other children) and we have many days like this. It is so very, very hard not to get down on yourself - but you are doing an amazing and admirable job.
Kudos to you for all your efforts! Sometimes it feels like nothing works, but at some level it did, just keep at it. I use to teach bipolar kids, and it constantly seemed liked nothing worked. However, there were wonderful moments when something did, and the child knew it and his smile showed how proud he was of his accomplishment. I tried to picture that smile on the days that nothing worked to help remind me that eventually we do get there.
Susan, I hope you have woken up this morning to a better day. I will never insult you by saying I know exactly what you are going through. I don't. I spend my days praying that I won't scream at my daughter and say something horrible that I won't regret because she has yet again pushed my buttons.
You are a great Mom who really works through things with Henry. It has to be really difficult, really tiring, and sometimes, really frustrating. The days where it will be rewarding are there too. And they will come again.
I love that you can say "I was a good mother today" because you were. You are.
I want to send ((((hugs)))) and all that, but I think that what you really deserve and need is something more concrete, a real, actual break. When my babies were driving me to despair, it seemed as if the harder it got, the more I felt the need to prove that I could do it all myself. My husband kept volunteering to call his parents in, and I always reacted poorly, like, "Yeah, perfect, then someone can be there to witness my failure and incompetence as a mother." If there's someone who can come in and give you a break this week, can you convince yourself it's okay to say yes?
I remember so well that awful, awful feeling when the scheduled treat I'd promised myself (an outing, a play date) turned into a disaster and I fled with my tail between my legs, screaming baby tucked under one arm. So ((((hugs)))) again, but I'd really rather offer you a day off.
Susan, hugs to you. I hope you are able to have some time to yourself this weekend, just to read or nap or whatever you need to recharge and relax.
By the way, I find myself often wishing that I was as good a mom as you are.
((((((Hugs)))))))
I don't have any advice Susan, but I will say I'm proud of you for being a patient, and consistant mom. It's not easy raising kids, and you may not hear this enough: you're doing a good job. I hope things 'click' soon for Henry. Big hugs to you.
I am in the midst of a similar bout of tantrums with Littleman. At the end of the day, if you can say you remained calm, in control and consistent, you're doing fine. I look at it as a kind of test. No matter what Lilttleman may unleash in terms of unacceptable behavior, I am his mom and I am not going anywhere. In some strange way I think it comforts him to know that. I also encourage Littleman to use his words, not his hands. I try to outline his choices for him and then give him a finite amount of time to make that choice. Sometimes I can redirect him towards an activity he prefers but not always.
This parenting stuff is not for the faint of heart!! Hang in there.
Too bad I can't convey the southern accent via typing, but to quote Scarlett O'Hara: "After all...tomorrow is another day."
Hang in there. I hope you are having a better day today.
Oh, Susan, I'm sending you hugs and hopes that you're getting some time to yourself and/or margaritas this weekend.
Summer isn't kind to mamas of quirky kids. I know this, because I am the worst mama in the world, according to my Henry. I know--you should tell your Henry he should team up with mine. They can form a union for kids who have the worst mothers in the world because they won't buy them everything they want and let them hit their siblings and call people names.
And then we can form our own union, one devoted to sipping margaritas and eating chips and salsa somewhere very, very air-conditioned.
Good golly, girl, you are an amazing mother with the patience of a saint. I bet your neighbors never overhear you leaving your kids' rooms at naptime, very frustrated, yelling, "Mommy needs a break!!!! You guys better take nice, long naps today!!"
(Umm, I am horribly embarrassed to admit that happened today chez moi, while husband worked overtime at the office.)
Many many hugs to you, Susan, and your sweet boys.
My eldest has Asperger's Syndrome and it sounds like he and Henry would have a lot to talk about.
We've had the throwdown meltdown breakdown trifecta take place in more public places than I care to remember.
He too was a demanding baby with issues a-plenty, and I remember sobbing onto his little baby head and calling the maternity ward asking if we could COME BACK because I was not up to the task. (Don't try it; they wouldn't let me.)
There is no easy answer. It is a ruthless, thankless job and nobody anywhere can convince me theirs is harder - or more important.
Take a deep breath - tomorrow is another day - you are not alone.
Susan - it sounds like you did everything absolutely and completely RIGHT! I am utterly impressed. You stood your ground, followed through on the consequences you presented, made sure Charlie understood what was going on, and remained calm and in control in front of your boys despite feeling like you wanted to break down yourself. Bravo! Again, I am so completely impressed!
I only have my one daughter, but she's in the Terrible Three stage of development. So I do hear you. She is perhaps more frustrating and unreasonable now than ever before. Still, we're trying to teach her how to own her feelings and not let the actions of others affect her mood (for instance, she freaks if Daddy is being "too silly" when she's not in the mood for silly). My mom reminded me that it's just her age. Yes, but that doesn't mean I'm going to let her flip completely out for no reason. "Oh well, what can I do? She's 3". Um, no. I don't think so. I will continue to reason with her and teach her proper behavior.
Hang in there. You're doing awesome! And I do hope you can have a fun "date" with your Hubby very soon. You deserve it!
Amy :)
Susan - I came to you through BlogHer. My 8yo daughter has SID and NVLD. We homeschool and arrange our lives (and the lives of my 6yo and 2 1/2yo) to support her. It sucks sometimes, and I wish we could just have fun and not be "different".
My daughter also has celiac disease and a dairy allergy, and the change to a gluten and dairy-free diet helped with her behavior and attitude immensely. I know it doesn't work for everyone, but we went from multiple daily restraints to control tantrums to much more normal and age-appropriate tantrums.
Of course, 8yos who tantrum and are incredibly sensitive to everything seem to invite comments, but 4 years ago when we changed things she was age-appropriate.
I look forward to reading more from you, and am so glad I found your blog.
My sister was a premie and went through her "terrible twos" three years late. ;-)
My mum did the exact same thing you're doing now, and my sis eventually got it into her head that tantrums really seriously weren't going to work.
Just keep reminding yourself that he's six and you're not asking too much. It could be the meds, it could be "a phase", but you're an awesome parent and doing the right thing.
Hi, I just got to your blog. whew.. sounds like my life. I know that doesn't help but my Aspergers guy J - literally wrecks things for the whole family. We wouldn't replace him for a minute and he is a great kid. But he wrecks outings. We are in Alberta, Canada where we get government funded Respite. I am starting to use it. Call it respite, call it babysitting - I need a break! I want a guaranteed fun time with my 4 year old, husband and 8 month old baby. I don't want the tantrums, and I don't want the hassle of having to leave and cancel. I want friends that aren't scared of hanging with us. So we are using respite. I am so happy I found this blog, good luck.
Oh Susan, I'm so with you here. We've had a bout of meltdowns lately. At our house, it's frustration with divorce-custody, back-and-forth between Mom and Dad's, Dad forgetting to get a birthday present and throw the promised party, etc. It's just hard sometimes. I ended up writing a long post on this myself. Hope things are looking up at your house and that you had a wonderfully swanky dinner with really great drinks!
oy.
that's all I got. just, oy.
well, and a hug.
*hug*
You did all of the things you were supposed to do. You're a great mom! I'm sorry it doesn't feel better right at this moment.
I'm sure the heat is part of what's causing his meltdowns. I feel like having tantrums in this kind of heat, too.
When I read your post I thought, I've had days like this! Henry may have issues but these things happen even with kids who don't have the kinds of stuff Henry has going on. It sounds to me like he is testing your boundaries and you are doing a fabulous job of standing up to the test. Kids do it differently and in different stages but they all eventually test your boundaries. By standing up to it you are teaching him (and Charlie) a wonderful lesson that many children don't get. Along those same lines, every job has its really bad days so hang in there kid, it will get better (and worse!). If you need confirmation that your job also has its good days, read your previous day's post!! Keep blogging -- it's good for all of us.
My children are teenagers (16 1/2 and 13 1/2) and I still have days like that where i feel like I want to cry, like everything I do and have done is wrong. That giving independance and letting them find their way thing is a killer... giving children their freedom to fly and make mistakes yet at the same time holding them close to make sure that nothing bad happens... how DID my mother ever do it?
This post is excellent. I have two like this. One is ten now and able to keep it together much more in public now than he was even a few years ago.
But the other "difficult" one is 5. Too young for an official diagnosis, though we know what it is. Too young for medication. And there are times I just want to cry over the simple fact that I want all of us to just be happy sometimes and I want things to be easy.
And while I know they can not help their behaviors, it doesn't make it any easier to deal with in the moment.
(((hugs)))
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